Showing posts with label rainbow baby. Show all posts
Showing posts with label rainbow baby. Show all posts

Thursday, September 15, 2011

my rainbow - one year old



one year ago my darling rainbow baby Willow was born, 9 weeks early. I had a chorio infection and she had to come out. She was a tiny little plucked chicken, with no butt and sticks for limbs. She had tubes and wires and IV's. she could not breathe or eat or poop or cry. modern technology did it all for her, bringing her from certain death to life.

Now, today she is one year old and thriving. She crawls and cruises. She says a few words and plays several games. she loves chocolate. tonight she will have a huge slice of chocolate cake all to herself.

Willow brought joy back into our house and we are all madly in love with her. Thank you Lord for bringing us Willow!

Sunday, January 23, 2011

a follow up piece?





i have started sculpting again. though the quality of my work is hindered by the short bursts in which i can work--Willow likes to nurse...a lot!
this piece is a follow up from my first sculpture after Aquila's death
Empty
in this piece i had wanted to have her stomach shown sewed up in a jagged scar, but the baby and her leaning around her hid the stomach. kind of interesting, as it seems like i often hold willow over my pain, like some kind of ointment.....

Tuesday, January 18, 2011

my rainbow








To say Willow spends a large amount of time in arms would be putting it mildly. There are always willing arms for her. Willow sleeps snuggled in the crook of my arms- because i cannot sleep with her anywhere else. Having lost a baby, and knowing full well the pain in empty arms, i enjoy every delicious moment, as i know they will not last...


"Song for a 5th Child" by Ruth Hamilton.

Mother, oh Mother, come shake out your cloth, Empty the dustpan, poison the moth,
Hang out the washing and butter the bread,
Sew on a button and make up a bed.
Where is the mother whose house is so shocking?
She's up in the nursery, blissfully rocking.
Oh, I've grown shiftless as Little Boy Blue
(Lullaby, rockaby, lullaby loo).
Dishes are waiting and bills are past due
(Pat-a-cake, darling, and peek, peekaboo).
The shopping's not done and there's nothing for stew
And out in the yard there's a hullabaloo
But I'm playing Kanga and this is my Roo.
Look! Aren't her eyes the most wonderful hue?
(Lullaby, rockaby, lullaby loo).

The cleaning and scrubbing will wait till tomorrow,
For children grow up, as I've learned to my sorrow.
So quiet down, cobwebs. Dust go to sleep.
I'm rocking my baby and babies don't keep.

Wednesday, December 1, 2010

loving Willow, missing Aquila



How does Willow fit into my grief for Aquila?

When Willow was first born I was so afraid of losing her that that was ALL i could focus on. Then as her NICU stay turned into a "grower/feeder" stay, my focus was on breastfeeding. I found bunches of resistance in the NICU (aside from one doctor and a small handful of the nurses and the LC )to me being there almost 24/7 and to my wanting Willow to leave fully breastfeeding. I found out later the nurses were giving me a hard time (and it wasn't all in my head) because of this blog. they had all been reading it and decided basically that i was nuts over the loss of Aquila. But they were so wrong. i would have been just as "annoying" if it had been any of my babies in that NICU. Breastfeeding is very important to me. I could care less if someone else wants to breastfeed their baby-that's none of my concern- but as for me and mine, we like the boob. And, the way i saw it, Willow should have still been in my tummy, so she needed me their to hold her as much as humanly possible. I kept saying- "we are a dyad..we need each other.."
So i had very little time for grieving Aquila, as mostly i was trying to be there 100% for Willow.
i did, however, find myself terribly angry (again) with Faith Beltz. See, the infection that made Willow come early and almost die was the very same bacteria that contributed to Aquila's death. See with Aquila i had a fever in labor. Faith said nothing to the hospital when i was admitted after delivery. Had she said something about the fever, they would have given me IV antibiotics. Later the coroner said Aquila had a Chorio infection, which Faith should have know BEFORE the abruption began. quotes from here :

"Symptoms of chorioamnionitis include fever and tenderness in the uterus. The baby may show signs of infection, such as a fever or a higher-than-normal heart rate.


Symptoms may include:

*
Fever

*
Significant maternal tachycardia

*
Fetal tachycardia

*
Tender or painful uterus

*
A foul odor of the amniotic fluid

*
Maternal leukocytosis
"
"Chorioamnionitis may initiate uteroplacental bleeding or a placental abruption."

According to my OB from Willow's pregnancy this is what happened=
The bacteria that caused the chorio (which likely caused the abruption) was never treated with antibiotics. it continued to live in my uterus, but was kept fairly in check by my strong immune system. however, the week before Willow was born i got the nasty virus that put me in the hospital. that virus lowered my immune system-helping the bacteria to gear up for an attack-which it did.

So, thanks to my midwife's incompetent care i not only lost a baby, but almost lost another one, and was subjected (as was Willow) to a horribly stressful NICU experience. And it was during this stressful NICU stay that Faith slapped me in the face by saying i refused to transfer (complete lie) at the second board meeting - see this post.
so, yeah, Angry does not begin to cover it.

But there was the sweetness of holding Willow all those hours..i needed that..it was what i had yearned for for months. i would try holding other babies, try stroking thier hair to see if it felt like Aquila's, but none ever did..none ever gave me that which i needed so badly...but Willow was mine, my sweet smelling, sliky haired baby. It's like a line from my favorite poem
Propaganda poem: maybe for some young mamas by Alicia Suskin Ostriker

"oh young mamas
no matter what your age is you
are born when you give birth
to a baby you start over
one animal
and both gently just slightly
separated from each other
swaying, swinging
like a vine, like an oriole nest
keep returning to each other
like a little tide, like a little wave
for a little while
better than sex, that bitter honey, maybe
could be the connection you’ve been waiting for
because no man is god, no woman is a goddess
we are all of us spoiled by that time
but a baby
any baby
your baby
is the most perfect human thing you can ever touch
translucent
and I want you to think about touching
and the pleasure of touching
and being touched by this most perfect thing
this pear tree blossom"

I cry mostly at night, when Willow is snuggled by my side, and i am stroking her hair. Because, then i can almost picture Aquila in my arms. Seeing the things Willow does makes me sad for the things Aquila was not able to do... I think it is good that Willow does not look very much like Aquila, because i would not want the moments of flooding grief to catch me unawares.

Friday, October 1, 2010

Willow updates





I have been busy..very busy- holding my baby. my day consists of waking at 7 am to pump, scarfing down some oatmeal and packing my stuff and heading out the door. I drive to NICU and spend the next 9 hours there, holding Willow and trying to breastfeed her. I pump every two hours during the day, usually with her in my lap. i then go home at 5pm to eat dinner with my family. i come back up to the NICU after shift change at 7:30 pm and stay till about 10pm. Then i drive home in a daze, pump and sleep for 4 hours, till i need to pump again.
but every minute is worth it. i could hold her 24 hours a day. i hate putting her down and driving away.

So, as far as her progress. She started off on a CPAP machine which blew air into her lungs under pressure. She had all feeds by IV and was on IV antibiotics for 10 days. She was jaundiced (put under Billi lights).She had to stay under a radiant heat warmer in just a diaper to maintain her temp. She blew out IVs like most people change socks- 10 (or more??) IVs placed in 10 days....
She had multiple apnea spells and heart rate dips, for which they put her on oral caffeine. She had one dose of surfactant to lubricate her lungs. She had a spinal tap and countless blood draws.
She dropped from her birth weight (4 pounds) down to about 3pounds 14 ozs.

Now,at 16 days , Willow is rocking the NICU. She has done better, faster than anyone predicted.

She is over her birth weight (4 pounds, 1 and 1/2 oz). no more IV antibiotics or feeds. no infection. no more breathing apparatuses. She is breathing room air without help. She has been taken off the caffeine and we are waiting to make sure her heart rate stays steady. She is fed through a tube in her nose. My milk supply has risen to enough for two Willows!
She has been trying at the breast all week and has had two real swallowing feeds there (yesterday and today)

She has moved into a regular infant bed and is wearing (tiny) clothes.

Like i said, she is a rock star!

All she needs to do to come home is learn to eat for all her feeds and continue gaining weight and keeping her heart rate steady.

So any prayers towards those goals would be welcomed!

God is good and everything he does is good. Thank you Lord!

Thursday, September 16, 2010

Willow Grace Paparella


Baby Willow Grace came into this world, pink and screaming just before midnight last night, Sept 15th (exactly 2 months early/31 weeks). She is in the NICU but doing great so far. please pray for her heath, breathing and a speedy recovery!